How to best offer research to hospitalized patients is unknown. Our goal is to design and test new ways to offer research, and we seek patient representative feedback on our plan.
When people are in the hospital, it's a tough and stressful time for them and their families. Keeping patients' privacy is super important, and the doctors and nurses are usually very busy taking care of them. So, figuring out the best way to talk to patients about research is not easy. We're trying to find better ways to do it, and we'd like to hear what people who represent patients think! We want to make sure that whatever we come up with is respectful and helpful for patients.
A one-hour video call (e.g., Zoom) and brief follow-up email.
Hospitalized in the past 5 years or was the advocate for a hospitalized loved one (child or adult) in the past 5 years (e.g., your child or spouse was too sick to talk, so you spoke for them)
Proposal in development
Want to ask a question or share an idea with this researcher? Go ahead and ask!
Your question may end up on this page! The researcher will review all questions and decide whether to post the answer publicly. Your question will not be attributed to you.
Do you or does someone you know have a story related to this study? Your story can help this researcher know what to study.
We'd love to hear it.
We're sorry. Team building for this study is now complete and it is no longer engaging additional people.
Wondering what it's like to be a patient partner in a clinical study? Here are some links to resources.
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