COVID-19 STORIES

The COVID-19 pandemic has brought so many changes to our lives. Some, like masks, isolation, and business or school closures, are quite apparent. Others are more subtle. And some changes have affected only certain members of society. Many people are struggling to understand what COVID-19 will mean for us in the long-term. Some of us are coping with, caring for, or trying to protect, loved ones – or dealing with terrible loss. In such complicated times, stories may help listeners to understand what this pandemic means to our communities. Therefore, we have created this “special collection” of narratives that address life and health during the COVID-19 pandemic. Patient advocate and medical expert responses to the stories are also shared in the accompanying videos.

Story Booth, storytellers have often noted that one reason they share stories is to help others who are facing a similar situation to feel less alone. We hope that these stories will help make such connections at a time where so many people feel isolated. Storytellers have also identified situations where health care is working well and areas where there are gaps. A primary Story Booth goal is to foster a better understanding of these situations – and in doing so, to help those working in health systems and health research to adjust patterns of clinical care as needed to promote health.

The Story Booth team is extremely grateful for the opportunity to hear these stories and is committed to drawing attention to the storytellers’ voices. We hope that you will listen and learn too, and even consider sharing your own perspective.



CALL TO RESEARCHERS

Please spend some time listening to the stories that our community members have so generously shared about their experiences related to COVID-19. We hope they inspire you to ask research questions to address concerns raised or amplify approaches to public health and care delivery that people have found to be promising. Plus, let us know if you’d like to build a stakeholder-engaged team! Working together, we can overcome COVID-19.

PATIENT,CAREGIVER,PROVIDER STORY

And there were so many horror stories out there, of people dying of at a young age...

This storyteller shares their experience has a nurse throughout the COVID-19 pandemic, having to administer vaccines , admit patients with COVID-19 and how they care for themselves in response to what they saw.

February 01, 2023 | 21m 51s
PATIENT STORY

"Do what you need to do to protect yourself"

This storyteller shared her experience living through the COVID-19 pandemic as someone who is HIV positive and caring for her aging mother.

June 03, 2020 | 17m 00s
PATIENT STORY

"I live my life day by day now...I don't know what's going to happen"

A storyteller explains alarming symptoms that have not been able to be resolved by her healthcare team. She explained negative experiences while trying to find someone who will listen to her concerns. After having multiple surgeries, she still finds herse

February 24, 2021 | 21m 17s
PATIENT STORY

...the access to scheduling a shot or scheduling an immunization was just terrible for most people.

This storyteller shares their experience obtaining the vaccine as a retired pediatrician and the lasting changes made during the pandemic.

June 24, 2021 | 16m 14s
PATIENT STORY

It just seemed like everything took so long to get done.

This storyteller shares their experience being hospitalized during the pandemic after an Ischemic stroke.

July 27, 2023 | 07m 10s
PATIENT STORY

So it is possible COVID was in my house.

This storyteller shares their experience after contracting COVID-19 and the social, financial, and physical impact it has had.

February 16, 2023 | 27m 03s
PATIENT STORY

My mom had a very difficult time in isolation... she was just angry and frustrated that she was there...

The storyteller describes her experience having an elderly mother in a senior care facility during the COVID-19 pandemic.

April 21, 2023 | 21m 48s
PATIENT STORY

..probably be a long long time before I just carry on a conversation with someone I ran into outside...

This storyteller shares how the COVID-19 pandemic impacted seeking health care, and also receiving early access to the vaccine through the veterans office.

October 06, 2021 | 21m 08s
PATIENT,CAREGIVER STORY

…take care of them in their time of need.

This storyteller shares their exeprince with COVID-19 as their whole family became ill and at that point they had taken the vaccine and the reaction after the shot.

June 06, 2023 | 21m 48s
PATIENT STORY

...this is really good, to get something relatively low risk.

This storyteller shares their experience during the COVID-19 pandemic, getting ill while vaccinated and how they've been managing their health.

March 24, 2023 | 12m 30s
PATIENT STORY

...for the rest of my life...I'm wearing a mask.

This storyteller shares the impact of the coronavirus on personal health preventions and the effort put in to receive the vaccine once available.

October 01, 2021 | 15m 39s
PATIENT STORY

"It's a sad statement but a true statement...sometimes it's not what you know but who you know, and it can make a difference."

A storyteller tells her experience as a patient and caregiver and discusses her experiences with back pain/surgery, atrial fibrillation, arthritis, and mental health. She talks about ways that she maintains her health through stretching, appointments, and

January 20, 2021 | 34m 00s
PATIENT,CAREGIVER STORY

…you don't know how much risk you're at.

This storyteller shares their experience being a caregiver over the last five years and the importance of maintaining your personal health , as she was recently diagnosed with an autoimmune disorder in the midst of the COVID-19 pandemic.

May 19, 2023 | 21m 27s
PATIENT STORY

Your way of living, your day-to-day can be changed pretty quickly.

This storyteller shares the impact of COVID-19 on relationships and the motivation to get vaccinated.

March 06, 2023 | 06m 12s
PATIENT STORY

She is the light of my life and I'm so grateful.

This storyteller shares their diagnosis of endometriosis , after having infrequent bouts of sharp pain, led them to change their diet and activity before surgery and eventually to the birth of their child.

March 07, 2023 | 23m 04s
PATIENT STORY

…so I thought it was valuable to be apart of the data.

This storyteller shares their participation in COVID-19 research and the importance of and quick efforts from his employer to get him and his spouse vaccinated.

April 25, 2022 | 09m 53s
PATIENT STORY

"...and get them to actually speak to each other."

This storyteller shares their experience with frequent UTIs as an older woman and seeking treatments with COVID-10 precautions in place. b

October 18, 2022 | 22m 59s
PATIENT STORY

The biggest thing that was wrong with me, was that I had absolutely no energy.

This storyteller shares their experience during the COVID-19 pandemic; finding what kind and where to obtain the vaccine, their personal experience getting the coronavirus and the challenge to get the community and the county to administer at home test.

January 19, 2022 | 22m 52s
PATIENT,CAREGIVER,PARTICIPANT STORY

"Even if you think you're protected, viruses can get you."

This storyteller shares their experience with COVID-19, the vaccines, research participation and being a caregiver.

December 09, 2022 | 19m 21s
CAREGIVER STORY

...when mistakes are made, it should be an opportunity to correct them...

A genetic disorder passed down through now three generations, leaves this storyteller sharing their experience with CADASIL and the challenges with getting answers when research has not reached far enough.

August 06, 2021 | 37m 24s
PATIENT STORY

...I said 'if this is how I feel and I've gotten vaccinated...what if you do get sick.

This storyteller shares the challenges they faced trying to obtain the vaccine, delayed medical care, and the impact COVID-19 has had in care facilities.

June 23, 2021 | 25m 26s
PATIENT STORY

Just being able to work throughout the whole pandemic helped with the mental...with the mental problems that went along the pandemic.

This storyteller shares their experience being a health care worker during the pandemic and receiving the vaccine.

July 28, 2021 | 16m 18s
PATIENT STORY

...I'm physically a different person, which brings down my emotional and mental health...

This storyteller shares how navigating the care system having been diagnosed with Hashimoto Disease, challenges of that seeking treatment and care during the pandemic with a autoimmune disorder.

September 13, 2022 | 17m 17s
CAREGIVER STORY

…somebody to keep them alive...

This storyteller shares their experience being a caregiver, managing their needs in this new position, and becoming ill themselves.

February 20, 2023 | 19m 33s
PATIENT STORY

If you suspect COVID test them right away. If not still test them.

This storyteller shares their experience being hospitalized showing signs of Rhabdomyolysis from getting COVID-19;being on dialysis, recovery and treatment.

March 09, 2023 | 10m 14s
PATIENT STORY

Their goal was to get me better and get me well. I don't think they knew COVID was around then. They didn't know until about a week or two after I came in.

This storyteller shares theirexperince with the coronavirus and how with the help from a team of doctors she was able get recover through the infection which had lasted nearly 30 days.

September 30, 2021 | 18m 57s
PATIENT STORY

I felt safer, but I still mask...

This storyteller shares their challenges with finding where to get the vaccine being apart of the first eligible individuals.

June 16, 2022 | 14m 11s
PATIENT STORY

Sometimes when you go to the hospital or doctor, you're frightened.

This storyteller shares their experience obtaining the vaccine injection and navigating the health system that has not always provided the best care and attention to patient needs.

August 17, 2021 | 27m 26s
CAREGIVER STORY

It was the most supportive thing, I could tell him anything.

Having been asked to take time off from work due to being a t risk of contracting COVID-19, this shares her experiences when of when her husband begins to have them.

May 20, 2020 | 36m 00s
PATIENT,CAREGIVER STORY

I had to think and I shouldn't take it for granted.

This storyteller shares their experience with COVID-19 when their family had it, her husband having had a serious case, challenges for getting their father vaccinated, and picking up new interests and socializing online.

June 13, 2023 | 14m 26s
PATIENT STORY

…and it should be the doctor should be held accountable too.

This storyteller shares how the lack of accommodations and education on Autism, has made receiving health care challenging; distrust of doctors, lack of health care options and communication.

February 16, 2023 | 14m 32s
PATIENT STORY

It changes a lot of people's lives....

The story teller describes their experience during the pandemic and her diagnosis of COVID-19.

February 27, 2023 | 07m 47s
PATIENT,CAREGIVER,PROVIDER,PARTICIPANT STORY

…people were uncomfortable doing it anyways, so let's not go back.

This storyteller shares their exeprince with COVID-19; changes implemented in their job to reduce spread, the precautions taken working in a hospital setting, and testing positive themselves, alongside their family, with COVID.

May 15, 2023 | 17m 26s
PATIENT STORY

"...they don't even know when they're caring it around."

This storyteller shares their experience managing their health during the COVID-19 pandemic, obtaining the vaccines, and going through rehabilitation due to a n injury of the femur.

October 26, 2022 | 20m 07s
PATIENT STORY

…I prefer COVID and not tinnitus...

This storyteller shares how they were visiting the US during the COVID-19 pandemic, received the vaccines, and is now managing tinnitus.

April 04, 2023 | 16m 34s
PATIENT STORY

"Annoyed in the Wilderness with this Face."

This storyteller shares the challenges of finding a competent research driven medical team when it comes appropriate rehabilitation for Bell's Palsy: an unexplained episode of facial muscle weakness or paralysis.

March 08, 2022 | 25m 51s
PATIENT STORY

"If something is bothering you and won't go away, go right away...don't wait a year"

A storyteller talks about her surgery and being a caregiver for her husband's surgery while explaining things she does in daily life to maintain her health. Also, she discusses how the COVID-19 pandemic has allowed her to slow down and appreciate these ac

January 22, 2021 | 19m 00s
PATIENT STORY

I don't know if I'll ever get any...see improvement...

This storyteller shares their challenges with managing their health for diabetes and the changes they've had to make, as well as trying to get relief for their neuropathy.

May 24, 2023 | 13m 33s
PATIENT STORY

It has improved my health, the care of my teeth.

This storyteller shares how holistic health treatment can really impact the quality of life and the impact COVID-19 pandemic had on that reality.

March 01, 2023 | 18m 33s
PATIENT STORY

"...and it's very hard...to convince people that you aren't just tired."

This storyteller shares health complications related to a severe childhood scalp avulsion and navigating the health system with autoimmune diseases as a young adult.

October 19, 2022 | 25m 14s
PATIENT STORY

That's a big finish with this COVID[-19] thing.

This storyteller shares the impact of the COVID-19 pandemic financially and socially, and why they decided to get the vaccine despite some trepidation. .

March 13, 2023 | 20m 00s
PATIENT STORY

"...because sometimes you think you have everything done right, but then it doesn't work."

This storyteller shares their experience receiving the COVID-19 vaccine and booster, along with the great care she has received from her health care team, over the years.

February 16, 2022 | 10m 06s
PATIENT STORY

Now that I've spent the time and the money, I'm really excited.

This storyteller shares the challenges of seeking mental healht treatment for anxiety, and the transition into tele-health during the COVID-19 pandemic.

April 17, 2020 | 19m 00s
PATIENT STORY

...so please love your friends, love everybody who has COVID.

This storyteller shares the impact of having COVID-19; the three months of isolation they experienced due to wariness from family and friends, and the impact it had on their academics and work.

February 10, 2023 | 18m 10s
PATIENT STORY

...hear their concerns and make them feel heard.

There was no question this storyteller would be receiving the vaccine, fortuanate as they were to receive it early,this storyteller shares the anxiety in going to too public places and changing plans.

July 08, 2021 | 19m 19s
PATIENT STORY

...well I want to get it for myself.

This storyteller shares their experience getting the COVID-19 vaccine and how they managed social gatherings.

July 27, 2023 | 06m 00s
PATIENT STORY

…spend everyday really in way that is like meaningful and purposeful...

This storyteller shares the impact of the COVID-19 pandemic, getting the vaccine, and testing positive for COVID-19.

May 01, 2023 | 10m 10s
PATIENT STORY

Our son made an appointment for the first one for us... because it was so hectic. Ya know everyone was trying to make appointments at that time period.

This story shares their experience receiving the vaccine and how they've maintained their health throughout the coronavirus pandemic.

September 30, 2021 | 11m 06s
PATIENT STORY

...this is a time where you can work from home...

This storyteller shares her journey through mental health and the challenges with maintenance during the pandemic.

January 06, 2021 | 21m 00s
PATIENT STORY

"I have been successfully treated for depression for the last 23 years, but I feel like I have been depressed my entire life until that point."

In this story, a participant discusses her experience with depression, hip surgery, and a condition that is a precursor to blood cancer. She also discusses the difficulties of getting older and availability regarding the covid vaccine.

February 12, 2021 | 22m 42s
PATIENT STORY

I thought it was a cold or something but then I started getting feverish...

The storyteller details her experience with the COVID-19 vaccine and testing positive afterwards. She describes the complications and long term symptoms that occurred as a result of her COVID-19 diagnosis.

March 14, 2023 | 06m 38s
PATIENT,PARTICIPANT STORY

"I don't feel like I'm a patient as much as I used to, I feel like a customer..."

This storyteller shares their experience with finding a new PCP, increased exams with new biopsy report, and recovering from COVID-19 being immunodeficient.

January 25, 2023 | 19m 00s
PATIENT STORY

…has never went back to what it was...

This storyteller shares their experience when they tested positive for COVID-19 and some lingering symptoms.

March 20, 2023 | 10m 44s
PATIENT STORY

...so that getting it was very nerve-wracking.

This storyteller shares what conversations and research ultimately led to them getting the COVID-19 vaccine and the impact it's had when it came to being present for loved ones.

March 08, 2023 | 12m 28s
PATIENT STORY

…she never complained, and when she complains,they say 'Oh, that's okay , that's normal.', and no it wasn't.

Having seen generations of women in her family diagnosis with cancer, this storyteller shares making the hard decisions in prevention.

December 14, 2020 | 21m 00s
PATIENT STORY

...somebody that cares about the people around me, despite everything else going on...

This storyteller shares their experience during the COVID-19 pandemic; the impact on family, work, and getting vaccinated.

June 06, 2023 | 16m 05s
PATIENT STORY

Don't demand too much of yourself...

This storyteller shares the anxiety experienced as reaching old age has made aware their health, this coming alongside the COVID-19 pandemic.

August 18, 2021 | 31m 56s
PATIENT,CAREGIVER STORY

...and he's telling me you need to get somebody in there to help you

This storyteller shares the impact COVID-19 had on her marriage, managing her health, and being a caregiver to a resistant partner.

May 09, 2023 | 20m 55s
PATIENT STORY

…because I knew I could affect other people more than it would affect me

This storyteller shares their experience during the COVID-19 Pandemic; testing positive for the Coronavirus , managing the mental and physical health, and staying present with loved ones.

March 31, 2023 | 18m 49s
PATIENT STORY

...COVID, having it twice especially, mad e my conditions a lot worse.

This storyteller shares the impact of the COVID-19 pandemic on their academic path, getting vaccinated, and becoming ill themselves, as someone who is immunocompromised.

May 08, 2023 | 23m 37s
PATIENT STORY

"My Philosophy is, you take what comes, you deal with it, and you move on."

The story teller tells about her experiences with lung cancer and keratosis and the side effects she experienced as a result of radiation treatment.

July 01, 2020 | 14m 00s
PATIENT STORY

...Just because I didn't feel like I had to worry quite so much.

This storyteller shares their experience during the COVID-19 Pandemic and what it was like getting the COVID-19 vaccinations.

June 21, 2023 | 15m 28s
PATIENT,CAREGIVER,PARTICIPANT STORY

...my families there you know, and I;ve never spend so much time [without] seeing them

This storyteller share their experience during the COVID-19 Pandemic as a new student in a new country, managing their health getting the vaccine and caring for their partner.

April 14, 2023 | 19m 48s
PATIENT STORY

"It dawned on me a few months after I was over all of this that I could have died, and I didn't, and I'm very fortunate for that."

The storyteller tells his experience with being diagnosised with COVID-19 and how it affected his life.

July 13, 2020 | 15m 00s
PATIENT,PARTICIPANT STORY

"At the end of the day...there's a feeling of doing something that benefits a whole lot of people."

This storyteller shares their experience with research participation wherein having tested positive for COVID-19 he was provided medication for intervention.

December 21, 2022 | 11m 38s
PATIENT STORY

…greater comfort with uncertainty.

This storyteller shares how they managed their health during the COVID-19 pandemic, their thoughts and experience with the vaccine, and with COVID-19 personally.

May 11, 2023 | 19m 38s
PATIENT STORY

...you really felt this sense of isolation.

This storyteller shares the impact COVID-19 has had on his work, physical activity, and social isolation.

May 15, 2020 | 16m 00s
PATIENT STORY

I saw a whole side of my community, I've never seen.

This storyteller explains the steps him and his community have taken to protect everyone during the COVID-19 Pandemic.

April 13, 2020 | 27m 00s
PATIENT,CAREGIVER,PARTICIPANT STORY

...because I'm afraid I'm going to get sick.

This storyteller shares their experience with navigating the health care system while managing multiple conditions, the earliest being COPD (Chronic Obstructive Pulmonary Disease).

April 13, 2023 | 20m 44s
PATIENT STORY

...I am very capable of managing whatever the consequences may have been.

A woman shares her luck when it came to surgery before the COVID-19 stay at home orders, her familial relationships having grown stronger for it.

May 28, 2020 | 18m 00s
PATIENT STORY

"I think that's the most hurtful thing in seeing everyone kind of disregard the masks and the hand washing is that it feels like they're disregarding me and the worth of my life as well"

A woman living with multiple health conditions describes her experience in quarantine during the COVID-19 pandemic.

June 23, 2020 | 12m 00s
PATIENT STORY

That was kind of helpful because I didn't really workout or anything.

This storyteller shares their experience with compartment syndrome which causes pressure in the muscles and causes pain.

February 17, 2023 | 18m 21s
PATIENT STORY

"It's not that much fun to do anything any more, we don't have any of the things we usually have together"

This storyteller tells her story about what it is like to live in a residential living facility during the COVID-19 pandemic.

June 10, 2020 | 25m 00s
PATIENT STORY

...as we're talking about health rather than illness, that's a good thing.

This storyteller shares how commiting to a life of having a positive outlook, doing the things you enjoy, and taking the time to educate yourself on current health related materials, will lead to sustainable healthy lifestyle.

June 18, 2020 | 22m 00s
PATIENT STORY

...we've gotten nothing.

With quarantine extended because of COVID-19 , this storyteller shares his experiences with social distancing, medical professionals, and the employment consequences.

May 18, 2020 | 28m 00s
PATIENT,PARTICIPANT STORY

Like I say, I feel wonderful.

This storyteller shares their experience managing their health, pre- and post- COVID-19 Pandemic, current health concerns, and their experience when they had coronavirus.

February 27, 2023 | 15m 34s
PATIENT STORY

...not being near or around your partner or live in your own home is very difficult.

This storyteller shares the way the COVID-19 pandemic has impacted their life and how the vaccine mitigated the more severe symptoms of COVID, when they were unexpected faced with someone with COVID-19.

October 13, 2021 | 13m 19s
PATIENT STORY

"...push to get seen."

This storyteller shares their experince with COVID-19 , vaccines, and Boosters, with the doctors concerns about their asthma and blood oxygen levels.

January 23, 2023 | 18m 40s
PATIENT,PARTICIPANT STORY

Well I think that I learned it's okay to slow down.

This storyteller shares the impact COVID-19 had on their family, themselves as a kidney transplant recipient and their social life.

March 14, 2023 | 08m 07s
PATIENT STORY

"I lost my faith in my normal provider, he dismissed what I had to say, he did not notice, he did not allow me to be a partner in my healthcare knowing what I know and experiencing what I experience."

This storyteller describes his experience with patient provider communication and the importance of listening to what patients are saying.

June 17, 2020 | 18m 00s
PATIENT STORY

...that I did not go to med school, but I know my body.

This storyteller shares their health care experiences with Multiple Sclerosis, the diagnosis and treatments received prior and after, the impact as it progresses and finding community for treatment accessible treatment options.

August 24, 2022 | 23m 51s
PATIENT,PARTICIPANT STORY

I'd never had anything that hung on quite like this before.

This storyteller shares their experience with COVID-19: moving to remote work, getting the first vaccine, becoming infected with COVID-19 and the severe symptoms from the boosters.

February 14, 2023 | 24m 03s
PATIENT STORY

…I'd only heard of it till I got it.

This storyteller shares how a bike injury in the 70's, led to a diagnosis of Lupus and the following health concerns and treatment journey.

June 15, 2022 | 14m 44s
PATIENT STORY

…quick process through and it was very impressive…

This storyteller shares their experience obtaining the vaccine; challenges, concerns, and after response.

June 14, 2021 | 09m 27s
PATIENT STORY

This is four months later; I still don't have the stamina and I still don't have the wind and the breathing capacity that I had prior...

This storyteller shares their experience with the vaccine and the impact the pandemic has had on their health.

June 30, 2021 | 17m 22s
PATIENT STORY

"I think it's just to keep myself and other people safe."

After receiving her first dose of the Pfizer vaccine, this participant talks about her experience, side effects, and reasoning behind getting vaccinated against COVID-19.

April 15, 2021 | 08m 53s
PATIENT,CAREGIVER STORY

...because they're so use to doing the things they've been doing.

This storyteller shares how the COVID-19 pandemic has not only heightened concerns for her health, but also here work at the time and her relationships.

May 08, 2023 | 11m 25s
CAREGIVER STORY

"And it was beyond pathetic,it was like they didn't care because he was dying."

This storyteller describes her husband's medical care prior to his passing and her role as his primary caregiver.

April 28, 2022 | 22m 41s
PATIENT STORY

If they're not communicating to each other, they both kind of have an obligation to find out why.

This storyteller shares their experience caring for their parents, the types of care they're receiving and as a patient managing multiple health concerns.

August 09, 2022 | 21m 51s
PATIENT STORY

You know, trying to keep a positive perspective on that.

This storyteller shares the impact COVID-19 had on their education, family, practice, and recovery after testing positive.

March 01, 2023 | 09m 46s
PATIENT STORY

"I literally woke up one day with sores, and you are telling me essentially to chill out and that I don't need medication"

A storyteller talks about her experience being African American while seeking proper care from the healthcare community. She talks about the impact of race on the quality of care she has received and her steps to ensure she has a doctor who fully listens

January 27, 2021 | 18m 02s
PATIENT STORY

“...I literally had to beg, I had to get urgent referrals…”

This storyteller shares their experience navigating the health care research system, at the beginning of COVID-19, after being diagnosed with Sjogren's Syndrome; an autoimmune disorder.

August 31, 2022 | 26m 53s
PATIENT STORY

You have to work twice as hard , when you' get older, to be half as healthy.

This storyteller shares their health journey with Nelson syndorme, anaging mental and physical healht during the COVID-19 pandemic.

April 15, 2022 | 23m 21s
PATIENT STORY

...it really makes you appreciate that feeling of freedom. It is a wonderful feeling.

This story teller shares their experience with the vaccine, and how the challenges toward activity when things are on lockdown.

June 30, 2021 | 14m 48s
PATIENT STORY

"We decided to move across the country due to the coronavirus"

The storyteller shares experiences about the coronavirus pandemic, vaccinations, and pregnancy during the pandemic.

October 01, 2021 | 21m 24s
CAREGIVER STORY

...it felt like my days didn't necessarily end at 5 o'clock.

A school board therapist shares the different responses regarding COVID-19, from patients , as well as the work and life-style changes.

December 16, 2020 | 17m 00s
PATIENT STORY

"Anything can happen in the next two or three years, that we will not be able to travel."

This storyteller shares the challenges they faced obtaining the vaccine after first eligible groups were announced and what it has been like managing their health.

May 17, 2022 | 15m 58s
PATIENT STORY

...nobody believed I was sick, and I was very terribly sick...

This storyteller shares their experience managing multiple symptoms , treatment changes, while searching for answers and reaching out to more institutions.

August 16, 2022 | 18m 02s
PATIENT STORY

Well after I got the shot I had no side effects, except this...

This story teller shares their experience with the vaccine and the symptoms they experienced afterwards, and how the pandemic impacted their life.

July 14, 2021 | 13m 25s
PATIENT STORY

The bad thing was you had to stay home, the good thing was you got to stay home.

This storyteller shares their experience with obtaining and receiving the vaccine, as well as their experience throughout the COVID-19 pandemic.

December 15, 2021 | 14m 46s
PATIENT STORY

I would say the biggest challenge in the beginning was managing your own fear...

This storyteller shares what they've experienced as a family nurse practitioner during the COVID-19 pandemic.

July 30, 2020 | 36m 00s
CAREGIVER STORY

…when she was there, she knew that I had her back.

This storyteller shares being a caregiver and advocate for their mother while in a care home, the concern for her care as she contracted COVID-19 Thrice, and the need to communicate with the health care team.

March 09, 2023 | 17m 23s
CAREGIVER STORY

...because it doesn't seem anybody's watching what's going on, at all.

This storyteller shares how lack of communication between healthcare professionals led to the amputation of their father's leg during a visit to the hospital that also led to getting COVID-19 and how unsanitary care homes contribute to illness.

April 28, 2023 | 11m 42s
PATIENT STORY

I was kept inside most of the time. I didn't go out and socialize like I normally do.

This storyteller describes their experience receiving the COVID-19 vaccination

June 01, 2021 | 00m 00s
PATIENT STORY

Take caution... All because you say you're healthy doesn't mean the next person next to you is healthy...

The storyteller details her experience while being pregnant during the start of the pandemic and the way she navigated the healthcare system during the COVID-19 pandemic.

March 17, 2023 | 07m 05s
PATIENT STORY

...was a time for me to slow down and realize the things I really did want.

A month after entering a statewide shutdown, during the covid-19 Pandemic, this storyteller is diagnosed with a autoimmune disorder;being at risk and a physical therapist can make you conscious the changes you have to make for your health and safety.

July 06, 2021 | 23m 36s
PATIENT,CAREGIVER,PARTICIPANT STORY

I would much rather have dealt with that for 12 hours...

This storyteller shares their health care experiences during COVID-19 with respitatory and autoimmune conditions.

February 17, 2023 | 10m 54s
PATIENT STORY

You're not even allowed into the doctor's office...

This storyteller shares their experience after contracting COVID, health concerns that occured, and the impact the pandemic has had on their life.

September 03, 2021 | 17m 32s
PATIENT STORY

'… and that you know what's going on and just make decisions that are best for you."

This storyteller shares their health care journey with PCOS (Polycystic ovary syndrome) after having managed and did some research, finally got the diagnosis and the challenges of seeking health care during the COVID-19 pandemic.

August 26, 2022 | 20m 39s
PATIENT STORY

"Every single day, I learn something new from my seniors"

This storyteller talks about her experience being a caregiver in the pandemic. She explains the process of getting the COVID vaccine and how it impacted her daily activities. She also discusses how she stays happy during these times.

February 16, 2021 | 19m 00s
PATIENT STORY

...it's difficult...it turned my life upside down.

This storyteller shares the experience with a rare genetic disorder;Having fallen into a canontonic coma after a seizure, listen as the storyteller shares their journey through their generational health history and getting involved in research.

August 02, 2021 | 43m 40s
PATIENT,CAREGIVER STORY

...I want to them to understand that mental health is not a joke.

This storyteller shares their experience during the COVID-19 pandemic with multiple health conditions and the challenges getting health care and addressing a new diagnosis of Hashimoto disease.

June 05, 2023 | 00m 00s
PATIENT,PARTICIPANT STORY

..well your double vaccinated just like the president so...

This storyteller shares how the COVID-19 pandemic motivated them to make preventative health decisions and the necessity to get vaccinated.

March 02, 2023 | 08m 17s
PATIENT STORY

…and people were kind of scrambling to get toilet paper.

This storyteller shares their experience getting COVID , being asymptomatic, having to find emergency accommodations to quarantine, the challenges to get tested, and eventually getting the vaccine.

April 27, 2023 | 12m 25s
PATIENT STORY

... Initially I waited, just because I'm younger and not really at risk...

The storyteller shares his experience receiving the COVID-19 vaccine and subsequent boosters.

April 18, 2023 | 06m 29s
PATIENT STORY

For certain medical conditions, speaking to someone was all I need...

This storyteller shares their experience seeking health care specialist after moving, the the challenge of getting an appointment, and what treatment has been like in the meantime.

May 11, 2023 | 17m 58s
PATIENT STORY

...concern that they don't wan't to expose their family to any degree of risk...

This storyteller shares their experience when they contracted COVID-19, along with their family, and their thoughts on getting the booster vaccine.

October 13, 2021 | 11m 22s
PATIENT STORY

Just do what you can, when you can.

This storyteller shares their journey with Dystrophy Myotonic Type 2, diagnosis and beyond.

October 20, 2021 | 12m 19s
PATIENT STORY

...are we any more prepared...

This storyteller shares their experince during the COVID-19 Pandemic; the impact it had on scheduled surgery, being isolated, getting vaccinated and experiencing symptoms .

June 15, 2023 | 17m 30s
PATIENT STORY

There were quite a few times where I would call home and say, "I can't do this."

Having had childhood brain tumors, with an upcoming brain surgery, this storyteller shares on navigating college and the health system during a pandemic being immunocompromised.

August 17, 2021 | 36m 48s
CAREGIVER STORY

"...and getting it on paper, so that your loved ones know what your wishes are..."

This storyteller shares their dual experience being a health care provider within the ICU and contracting COVID-19 themselves; the necessity of end of life plans and spending time with loved ones.

February 15, 2022 | 24m 43s
PATIENT STORY

..very attuned to pain, but not to what I call function.

This storyteller shares their health care experience when it comes to Spinal Stenosis surgery and recovery.

November 09, 2022 | 20m 09s
PATIENT STORY

Not only was it a change of my body, but my mindset as well.

Almost five years out from bariatric surgery, this storyteller reflects their emotional reliance on food, how this decision should be a tool through weight loss, and the emotional impact of the COVID-19 Pandemic on weight gain.

June 07, 2021 | 36m 45s
PATIENT STORY

...she was real matter of fact, 'you were a non-event'.

This storyteller shares how recovery after having COVID-19 has pushed her to question the healthcare system, as well as gaining more compassion for her well-being.

July 29, 2020 | 43m 00s
PATIENT STORY

…and it just brought a sense of adventure and an appreciation for simple things...

This storyteller shares the impact of the COVID-19 pandemic on their family, getting them all vaccinated due to a child at high risk and the emotional and social impact as well.

June 16, 2023 | 12m 52s
PATIENT STORY

She would say, "Well, you don't look sick..you don't look like anything is wrong with you."

Alarming symptoms of weakness in one leg, fatigue, and sudden weight loss eventually led to this storyteller's diagnosis of reflex sympathetic dystrophy. She talks about life after the diagnosis, including the passing of her husband and moving away.

May 03, 2021 | 38m 21s
PATIENT STORY

"Finally someone is listening to me..."

This storyteller talks about her struggles finding physicians who listened and took her concerns seriously after having symptoms that pointed to Celiac's Disease and thyroid complications. She wants physicians to consider a patient's history and daily rou

January 15, 2021 | 31m 00s
PATIENT STORY

Anything that can protect you…I consider very important.

This storyteller shares how she stayed inform about the avalbility of the COVID-19 vaccines, planning for other medical appointments, and how time has been spent during the pandemic.

June 09, 2021 | 17m 32s
PATIENT STORY

The hardest thing was taking her to the hospital and leaving her there.

This storyteller shares their expeirnece with COVID-19 infection through themselves, and the loss of their mother, and the impact the pandemic has had on quality of care in the health institutions.

August 13, 2021 | 27m 02s
PATIENT STORY

...it made it harder for us to go out and explore things with her.

This storyteller shares the impact of the COVID-19 Pandemic during pregnancy ,having gestational diabetes, and obtaining the vaccine.

June 23, 2023 | 16m 20s
PATIENT STORY

...I could have been sick a lot longer.

This storyteller shares their experience as a study participant after becoming ill with COVID-19 and the symptoms they were recovering from.

September 27, 2023 | 20m 44s
PATIENT,PARTICIPANT STORY

I didn't want to believe that I was a COVID patient.

This storyteller shares their experience with the COVID-19 Pandemic in other countries and going navigating multiple doctor's treatment in order to address long-COVID symptoms.

April 06, 2023 | 23m 29s
PATIENT STORY

...I'd never been that cold in my life...

This storyteller shares their experience with the health care system during the pandemic; the challenges of getting the vaccine, delaying surgery due to illness, the importance of community and the impact it has had.

May 05, 2023 | 20m 44s
PATIENT STORY

I just sincerely wish that there was more ways to get into studies...

This storyteller shares their experience with having COVID-19 twice and how that led to a research study which would introduce medication that has helped.

October 31, 2022 | 23m 05s
PATIENT STORY

…I find it ridiculously organized...greedy as far as the corporate structure.

This storyteller shares that they ease in which they were able to maintain their health, isn't what others experience, in fact the healthcare fails everyone.

December 02, 2020 | 44m 00s
PATIENT STORY

...and it's still important to try and at least interact with them.

This storyteller shareshavign potentially had COVID, yet was able to get testing because of not having met criteria and her concerns with it.

August 17, 2020 | 17m 00s
PATIENT STORY

It’s almost like if I get it, they’ll get it too.

This storyteller shares the impact of the COVID-19 Pandemic; new hobbies, maintaining relationships, and being at risk due to job position.

February 10, 2023 | 09m 16s
PATIENT STORY

And as we go forward...that needs to be something we address...

A storyteller shares their experience with the Coronavirus, recovery, and the response from healthcare since the pandemic.

November 18, 2020 | 32m 00s
PATIENT STORY

Like I said, the details they really pay attention to the details.

This storyteller shares the impact of a professional and empathetic health care team while receiving treatment for breast cancer, can help with quality of life and ease recovery.

February 28, 2023 | 22m 19s
PATIENT STORY

"...such a sigh of relief...to know someone had given it a name."

This storyteller shares their their healthcare experience as they're health started to exhibits symptoms similar to a stroke; Parsonage Turner Syndrome.

October 20, 2022 | 24m 12s
PATIENT STORY

"...I wanted to go someplace, is it worth risking your life for?"

This storyteller shares their experience with obtaining the vaccine and five boosters and the precautions they've made since the start of the pandemic, due to their age.

November 14, 2022 | 21m 12s
PATIENT,PARTICIPANT STORY

"...it was very personal every step of the way."

This storyteller shares their experience with being a research participant after contracting COVID-19 and how personal and positive the experience has been.

December 21, 2022 | 16m 24s
PATIENT,CAREGIVER STORY

You may not have been in the high risk category... but everyone knew someone or had someone that was.

The storyteller shares her experience as a caregiver to her family during the COVID-19 pandemic.

April 14, 2023 | 18m 13s
PATIENT STORY

I couldn't believe how quickly I gelled with that group.

This storyteller shares their experience with being a participant for a study implementing exercises and resources for people who have broken a bone or are prone to bone injuries.

June 07, 2021 | 12m 03s
PROVIDER STORY

...there's no reason that people should have to ask, if they can afford to get medical care.

This storyteller shares their experience as a health provider who had very limited access and understanding on the health care system and the steps they took to become more informed and how that has impacted their own discussions with patients.

May 18, 2023 | 21m 56s
PATIENT STORY

…I have always been in contact with my family

This storyteller shares how a great health management team and the having loved ones nearby, to visit , was what got them through and getting a vaccine.

December 16, 2021 | 15m 53s
PATIENT STORY

"There's some people I haven't seen for a year...I've had to do things differently."

This storyteller talks about what it was like getting the vaccine to protect himself against COVID-19. He briefly talks about his preexisting condition of epilepsy, how life has changed since the pandemic, and what he does now to stay safe.

April 30, 2021 | 06m 50s
PATIENT STORY

Getting the test felt amazing, to get a positive result, it was insane just how justified I feltfor having stayed at home for so long and be so adamant about it.

This story teller tells his story of having COVID-19, his symptoms, and the difficulties he encountered trying to obtain a COVID-19 test.

May 28, 2020 | 24m 00s
PATIENT STORY

"...if we got the vaccine, with our age, we wouldn't- I don't think we would have made it."

This storyteller talks about the slight challenge of getting the vaccine by phone, changes with social activities, and the concern they had with getting COVID-19 at their age.

February 07, 2023 | 13m 03s
CAREGIVER STORY

You're constantly asking the person with the illness, to do more stuff.

This storyteller shares being a support for her child with a chronic condition, and how being a nurse practitioner has made support easier at times.

September 16, 2021 | 21m 18s
PATIENT STORY

I didn't have the flu at all for the last two years and I kind of like that.

This storyteller shares their health journey with hereditary anemia or Thalassemia and their experience with COVID-19.

November 10, 2022 | 17m 38s
PATIENT STORY

I just genuinely appreciate getting to do things more.

This storyteller shares how their experience during pregnancy during the COVID-19 Pandemic

April 11, 2023 | 16m 53s
PATIENT STORY

I just thought it was the right thing to do...

This storyteller shares her thoughts on lifestyle changes when it comes to aging, supporting friends at different stages of their health, and making preventative health decisions .

April 28, 2021 | 20m 16s
PATIENT STORY

...if you contract this, the chances of you becoming very sick, is real.

This storyteller shares the measures taken during the pandemic due to being at very high risk of contracting the virus.

August 19, 2020 | 16m 00s
PATIENT STORY

...actually pick up the phone and call me back to answer my question, which I wasn't expecting.

This storyteller shares how their concerns with maternal health during their pregnancy, led them to look for a black OBGYN, the loneliness that came with COVID-19 precautions, and their overall care.

February 15, 2023 | 18m 00s
CAREGIVER STORY

Everything we do revolves around how is it going to affect her health.

This storyteller shares their experince with being a caregiver and support to their wife, diagnosed with stage one breast cancer , and as the years progressed its returned and spread to stage four.

February 13, 2023 | 22m 09s
PATIENT,PROVIDER STORY

I always had to reach out to a supervisor to make sure of the correct answer to give somebody.

This storyteller shares their experience with getting the COVID-19, managing their health when they and their family became ill with COVID-19 and being a health care provider during the pandemic.

April 10, 2023 | 12m 27s
PATIENT STORY

I was kinda shocked that as women they weren't really taking my pain seriously.

This storyteller shares their exeprince with the health care system dealing with a persistent and growing pain in their abdominals , during a COVID-19 wave, and the lack of care and expressed by multiple doctors from different hospitals.

March 16, 2023 | 20m 48s
PATIENT,CAREGIVER STORY

Take a moment to think back on all the little things...

This storyteller shares their experience with COVID-19, and caring for aging parents, dealing with grief and loss with patience. and empathy.

March 13, 2023 | 23m 37s
PATIENT STORY

...you don't have anybody to help you, don't have anybody to talk to.

This storyteller shares their challenges during the COVID-19 Pandemic while seeking housing and assistance , navigating programs and deciding to work on recovery from substance abuse.

April 17, 2023 | 16m 56s
PATIENT STORY

"You know that that discrepancy existed, but it just came to light how much..."

This storyteller shares on missing long-distance family, a new diagnosis of scoliosis, and experiences and thoughts during the pandemic.

May 27, 2022 | 22m 47s
PATIENT STORY

...I'm a much more social person than I've been able to be.

This storyteller shares the impact of the COVID-19 pandemic on their social life, how they've managed with new interest and research participation, and the obtaining the vaccine.

January 19, 2022 | 15m 29s
PATIENT STORY

I'm more important than the current project we're working on.

This storyteller shares how she maintains her asthma through yoga and diet,during COVID-19 social distancing.

May 26, 2020 | 12m 00s
PATIENT STORY

…and I've argued with every doctor I've ever encounter, argue with me over this allergy.

This storyteller shares the challenges and actions of physicians when she discloses her allergies and how resistance to change treatment delayed breast cancer treatment, all during the COVID-19 pandemic.

August 01, 2022 | 22m 26s
PATIENT STORY

"You don't need to wait until you reach a breaking point to ask for help."

After experiencing the painful loss of her mother, a storyteller talks about her journey getting help for depression and anxiety throughout the years. She explains what the process has been like to get a therapist that she feels a positive connection.

March 05, 2021 | 27m 32s
PATIENT STORY

Nobody ended up helping him the way he helped other people.

This storyteller shares the harrowing experience of a family member passing due to COVID-19, while also caring for her mother from afar.

April 15, 2020 | 18m 00s
PATIENT,CAREGIVER STORY

We’re still learning, we’re still trying to figure out everything.

This storyteller shares the challenges during COVID-19 pandemic, after the loss of her sister, recovering from severe COVID-19 symptoms, and taking preventative measures while out.

February 08, 2023 | 23m 17s
PATIENT STORY

Like a lot of places right now just don't have the help.

This storyteller shares how routine blood work revealed concerning levels in the thyroid and the advantage of finding a medication regime that needs very little adjustment over the years.

March 03, 2022 | 12m 50s
PATIENT STORY

“Fortunately I never had it but during the shutdown, when we weren’t allowed to do anything, I tried to keep busy.”

The storyteller shares experiences about the coronavirus pandemic, vaccinations, and experiences with family members.

November 12, 2021 | 14m 48s
PATIENT STORY

…having something to do and being helpful.

This storyteller shares how they managed their health during the COVID-19 pandemic, the growth in their faith and in the love from their community.

February 21, 2023 | 22m 02s
PATIENT,PROVIDER STORY

…they knew more than I could ever see in their chart.

This storyteller share their experience being a vaccinator at elderly care homes, receiving the vaccine themselves, and health care experiences prior to the pandemic.

February 13, 2023 | 20m 15s
PATIENT,PARTICIPANT STORY

…for us to realize that slowing down was important to our long term health.

This storyteller shares what went into getting the COVID-19 Vaccine

March 30, 2023 | 15m 03s
PATIENT STORY

...if you can't find it, you can't get rid of it, and it get's worse.

This storyteller shares the various health care they've had during COVID-19. and changes implemented.

December 18, 2020 | 15m 02s
PATIENT STORY

...the emergency doctor even said, 'Hm, you don't have a fever, but you do feel hot'.

This storyteller shares their experience navigating the health care system, during the COVID-19 pandemic, managing Lyme disease and the subsequent symptoms.

August 16, 2022 | 18m 08s
PATIENT,PARTICIPANT STORY

"...and that was uncomfortable, that I couldn't do that as easily."

This storyteller shares their experience with finding a new PCP, increased exams with new biopsy report, and recovering from COVID-19 being immunodeficient.

January 25, 2023 | 15m 07s
PATIENT STORY

So I said 'Thank you, but no thank you'.

This storyteller shares the changes you should make when it comes to severe high blood pressure, and the alternatives you can explore when wanting to reduce pharmaceuticals and after surgery.

May 25, 2020 | 24m 00s
PATIENT STORY

"It's a Christmas we will always remember."

In this story, a woman explains that what the local ER thought to be congestive heart failure was COVID-19. She talked about her symptoms, the visit to the hospital for 18 days in the ICU, and the recovery process. She briefly touched on what she is doing

February 26, 2021 | 22m 08s
PATIENT STORY

I was really nervous if I was going to get more long COVID symptoms.

This storyteller shares their experience when they started having COVID-19 symptoms.

March 21, 2023 | 06m 11s
CAREGIVER STORY

If you can't do it, and you can't breath, then you can't help anyone first.

This storyteller becomes a support for their sister after a suicide attempt , and shares the challenges of beign there fro a loved one during a pandemic.

August 12, 2020 | 19m 00s
PATIENT STORY

Constantly reminding myself that I'm not being lazy...

This storyteller shares their experience getting the COVID-19 vaccine, the impact of the COVID-19 pandemic has had while managing a autoimmune disorder, and the dealing with long COVID-19 symptoms.

April 10, 2023 | 13m 05s
PATIENT STORY

"The potential of the illness hasn't really changed me or changed us, I'm a three time cancer survivor so there's not much that scares me, I'm not scared of COVID but I'm causious."

Storyteller tells her story of being a three time cancer survivor taking chemo therapy during the COVID 19 pandemic.

July 14, 2020 | 17m 00s
CAREGIVER STORY

"If something happens in their life, they have no window of opportunity to get the second vaccination...they have to start all over again."

In this story, a caretaker tells us about her experience caring for her husband, father, and mother throughout the years. She closes the story by explaining the frustrations getting accessibility to the vaccine in her hometown.

March 03, 2021 | 23m 06s
PROVIDER STORY

...so we need to be creative and work with our immediate support systems or community.

This storyteller shares their experience navigating the health system as a social worker in acute outpatient with ongoing COVID-19 pandemic, getting vaccinated, and the impact on quality and efficiency of care.

February 15, 2023 | 15m 03s
PATIENT STORY

"Everyone was trying to figure out what the right required interaction should look like."

This storyteller shares their experience with COVID-19, getting the vaccines, and the changes they have made in that time.

November 28, 2022 | 14m 25s
CAREGIVER STORY

...she didn't even want to go to the doctors anymore, because none of them have many positive to say.

This storyteller shares being alongside their spouse through their Myotonic Dystrophy diagnostic journey and the frustration of working with health care workers with a chronic, debilitating condition.

October 21, 2021 | 25m 24s
PATIENT STORY

"We are very much in favor of the vaccine, we think it is very helpful."

The storyteller shares experiences about the coronavirus pandemic, vaccinations, and experiences with family members.

October 22, 2021 | 14m 09s
PATIENT STORY

… isolate yourself for like two weeks...

This storyteller shares the impact the COVID-19 pandemic had while in college and their decision on getting vaccinated or not.

June 20, 2023 | 17m 54s
PATIENT STORY

I think it changes us in how we appreciated interactions with some of our friends.

This storyteller shares how he has coped with social isolation, during COVID-19 social distancing, being at-risk.

April 21, 2020 | 12m 00s
PATIENT STORY

..to continuously remind myself, that it's nothing I did...

This storyteller shares their health care experience when it came to Renal disease, dialysis, and having had a transplant, staying safe during the COVID-19 pandemic.

February 22, 2023 | 21m 50s
PATIENT STORY

"As my mother put it, I've been sick since the day I was born."

In this story, a participant talks about her health conditions being born premature and her second diagnosis of colon cancer. She talks about her cancer experiences, how COVID-19 has impacted it, and what she does now to remain healthy and hopeful.

March 03, 2021 | 21m 56s
PATIENT STORY

I first began to start getting hot and cold flashes...

The storyteller shares his experience during the pandemic and receiving the COVID-19 vaccine.

April 25, 2023 | 07m 56s
PATIENT STORY

"I wish we had telehealth back then...I actually love telehealth."

In this story, a participant talks about her experiences using telehealth, recent diagnoses from doctors and their treatment, and what she has done to remain healthy during the pandemic. She highlights the importance of exercise in her daily routine.

March 05, 2021 | 24m 14s
CAREGIVER STORY

It was them that made me realize I was getting myself burnt out.

This storyteller shares the difference between being a community based nurse for Alzheimer and caring for a parent with Dementia; acceptance of limits and understanding loss and love.

February 10, 2023 | 22m 09s
PATIENT,CAREGIVER STORY

I think people kind of let their guard down a lot

This storyteller shares an update on the impact of COVID-19 in the last six months; dealing with loss, managing their health, and being a health care provider.

May 09, 2023 | 08m 12s
CAREGIVER STORY

She was so dehydrated they could barely get a needle in her.

This storyteller shares their health care system when their daughter was hospitalized for pneumonia and the desions made to advocate for the health and safety of their child.

November 09, 2022 | 13m 48s
CAREGIVER STORY

...today it's me, tomorrow it's you, so help me today.

This storyteller shares how in response to being isolated while they had COVID-19, after recovering they spent time caring for others who tested positive, throughout their community.

February 10, 2023 | 08m 44s
PATIENT STORY

...and make sure that our bodies were resilient enough...

This storyteller shares their experince having COVID-19 ; the precaution taken for their parents, lifestyle changes, and setting up an at-home vaccination.

June 16, 2023 | 18m 34s
PATIENT STORY

"I don't remember what it's like to not be in pain"

After receiving surgery for spinal scoliosis in early adulthood, this storyteller talks about the post-surgical complications of spinal stenosis and nerve damage later in life. He talks about the recovery process of the initial surgery, the symptoms he ex

February 05, 2021 | 27m 05s
PATIENT STORY

…how uncertain everything felt...

This storyteller shares their exeprince with the health care system after a traumatic injury left her admitted to the hospital, the multiple tests and exams, recovery and follow-up treatment.

May 15, 2023 | 15m 13s
PATIENT,CAREGIVER,PARTICIPANT STORY

…break down in simple language, so people will understand more.

With a chronic health condition and diabetes, this storyteller shares their experience with getting the COVID-19 vaccine and how receiving health care has changed.

February 16, 2023 | 18m 07s
PATIENT STORY

...I wasn't going cause I seen people kept getting sick.

This storyteller shares why they eventually decided to get the vaccine, the importance of doing your own research and checking in on your community.

February 27, 2023 | 12m 33s
PATIENT STORY

In terms of cardio health, I should be good and eat anything I want, but that's not really the case."

This storyteller shares how a severe leg injury and the following surgery, leads to multiple health concerns with severe chronic pain.

May 05, 2022 | 21m 32s
PATIENT,PARTICIPANT STORY

…but how to really promote health.

This storyteller shares their thoughts on managing emotional and physical wellness during the COVID-19 Pandemic and getting involved with vaccine related research.

March 13, 2023 | 15m 33s
PATIENT STORY

...that when we said, 'Alright, we need to be with one another...'

This storyteller shares their experience throughout the COVID-19 pandemic, their thoughts and decisions when it came to getting the vaccine, and how they managed their health during this time of transitions for them.

January 19, 2022 | 21m 42s
PATIENT STORY

One of the problems I feared was that we wanted to get the vaccine, but it was gonna be a long time before we actually got it.

This storyteller describes the process of trying to get the vaccine for himself and his loved ones

June 18, 2021 | 22m 48s
CAREGIVER STORY

...that we have never felt like a number.

This storyteller shares how the care of nurses and doctors made supporting her spouse through lymphoma treatment.

April 10, 2020 | 18m 00s
PATIENT STORY

I didn't feel like we were going overboard, but we really tried as hard as we could...where we were least likely to be exposed.

The storyteller shares the experience getting the vaccine and how they have been maintaining their health throughout the pandemic.

July 14, 2021 | 23m 24s
PATIENT STORY

It's good to have a skepticism...

This storyteller shares their experience advocating and making health decisions related to their religious beliefs and advocating for the appropriate treatment when limited by options and health care professionals.

March 02, 2023 | 19m 16s
PATIENT STORY

Some of those tests are NOT fun.

Having been dealing with a longstanding cough with no known cause, this storyteller shares how they were diagnosesd with Gastroparesis--having been managing the symptoms for years, as well.

April 25, 2022 | 14m 14s
PATIENT STORY

…I think just having that strong support network, that immediate family right there.

This storyteller shares the physical, social, and academic impact COVID-19 has had on them and their family.

February 15, 2023 | 13m 22s
PATIENT STORY

"So variety, physical activity, intellectual stimuation, inspiration, and spiritual devotion characterized my regimine of self care"

This storyteller talks about his experiences in being a caregiver to his community and what he has done to adapt his lifestyle during the pandemic. He also addresses issues such as food shortages, unemployment, and politics at this time.

July 16, 2020 | 16m 00s
PATIENT STORY

"I felt like I was just a case, rather than a person who had not only physical needs but mental and emotional needs."

This storyteller shares her experience with Ulcerative Colitis, including her long time struggles with symptoms prior to diagnosis and her eventual decision to get J-pouch surgery. She also discusses mental health and the need for doctors to consider the

June 05, 2020 | 18m 00s
PATIENT STORY

All I was doing was, dropping people off at the grocery store or dropping people off the gun shop.

This storyteller shares their experience during the pandemic, testing positive for COVID-19 and symptoms, and what they saw whole working during this time.

April 28, 2023 | 19m 48s
PATIENT STORY

Five grand..financial burden...as a nursing student ...straight from the hospital.

This storyteller shares the challenges to getting back on track, after recovering from COVID-19.

April 10, 2020 | 24m 00s
PATIENT STORY

What I do during the day depends a lot on the arthritis.

This story teller shares unusual symptoms they had after receiving their second shot of the COVID-19 Vaccine and how only time will tell what long-term effects this could have on someone with Rheumatoid arthritis.

July 16, 2021 | 13m 46s
PATIENT,CAREGIVER STORY

...I was hoping and praying that wouldn't be me.

This storyteller shares their experience managing symptoms when that tested positive for COVID-19.

March 20, 2023 | 22m 54s
CAREGIVER STORY

...it was as if she was a new patient...

This storyteller shares her experiences as a caregiver to her loved ones, as well as, the transition to long-term care.

April 16, 2020 | 25m 39s
PATIENT STORY

It's that same stigmatization of disease

This storyteller explores her diagnosis and treatment for lung cancer and what the experience was like as an older, single woman during the COVID-19 pandemic.

May 19, 2020 | 21m 00s
PATIENT,PARTICIPANT STORY

...wearing a mask is pretty important, no matter how much vaccine you got.

This storyteller shares their experince with the COVID-19 pandemic deferred their schooling, getting vaccinated in the US versus China, and symptoms despite vaccination.

February 15, 2023 | 19m 01s
PATIENT STORY

“You find out something new just about every visit…”

This storyteller shares the challenges with having a rare immune disease of the blood; where levels are monitored, recurrence is possible, and medication side effects can be severe.

August 31, 2022 | 21m 13s
PATIENT STORY

..be patient we'll get around to you, but three weeks off at a time and not hearing anything is frustrating

After a birthday celebration , this storyteller starts to suffer from severe abdominal pain, and after confirming that surgery is necessary, everything gets put on hold with concerns of COVID-19, leaving this man suffering for an undetermined amount of

May 29, 2020 | 16m 00s
PATIENT STORY

"I'm intelligent enough to understand the data and the science, and that's what I go with."

A storyteller talks about her experience through the pandemic and her life after receiving the vaccine. She talks about her daily activities and frustrations getting the vaccine in her community.

March 03, 2021 | 23m 24s
PROVIDER,PARTICIPANT STORY

…because they don't feel protected or heard.

This storyteller shares their experience with getting COVID-19, two years after pandemic began and providing health care during that time.

May 12, 2023 | 15m 23s
PATIENT STORY

"...I was happy to do that, because I thought I was dying. I had told my sister..."

This storyteller was diagnosed with Relapsing-remitting MS, wherein she experienced weaken leg stability , frequent falls and difficulty swallowing and a hospital that didn't do any sort of testing.

August 26, 2022 | 18m 36s
PATIENT STORY

And I just knew that if I had anything to do with them being ill...that would really just bother me a lot.

This storyteller reflects on the impact of the COVID-19 Pandemic when it came to reconnecting and making time o=for one another, as well as the many ways she found her self supporting other without support.

February 14, 2022 | 12m 25s
PATIENT STORY

I don't want other people to miss out on their life.

This storyteller shares their experience when they tested positive for COVID-19 during a trip, the recovery, and the impact the pandemic has had overall.

February 23, 2023 | 12m 55s
PATIENT STORY

In general, it was a pretty easy process. I would say that I mean the hardest process of all of it was to just get the appointment in the first place

This storyteller shares her experiences with the pandemic and getting the COVID-19 vaccine

June 18, 2021 | 07m 27s
CAREGIVER STORY

So we're still in this situation that we're living sorta on the edge all the time.

This storyteller shares personal health concerns and their spouses health during the COVID-19 pandemic-emergency surgeries and navigating being high risk.

August 11, 2022 | 23m 10s
PATIENT STORY

Just being more cautious in general towards it.

This storyteller shares their experience while getting the COVID-19 Vaccine, the challenges of seeking dental care during that time, and having COVID-19.

February 13, 2023 | 14m 01s
PATIENT,CAREGIVER,PROVIDER STORY

I just helped the workers as much as I could.

This storyteller shares what it was like during the COVID-19 pandemic, to care for a husband, themselves, and and a health care provider.

May 04, 2023 | 13m 13s
PATIENT STORY

I had to take my workload which was like three times as much, because ancillary department were refusing to go in there...

This storyteller shares their pregnancy experience throughout the COVID-19 pandemic; a candid talk about disparity of healthcare within underserved communities they saw, challenges with finding their own support, and seeing loved one contract COVID-19.

June 22, 2021 | 28m 03s
PATIENT STORY

...if there was a vaccine available I certainly would get vaccinated.

This storyteller shares their experince during the COVID-19 pandemic and finding the appropriate vaccine, while managing a new diagnosis of Behcet's syndrome.

June 20, 2023 | 11m 32s
PATIENT STORY

…saw him as valuing me as a patient and valuing me for my health.

This storyteller shares their experience with getting treatment after dealing with symptoms related to hyperthyroidism and the ways her health care team stepped up.

April 08, 2022 | 00m 00s
PATIENT STORY

"I am hoping that in another week or two, I can go out and see what it's like to go to a supermarket again"

In this story, a participant talks about her experience getting the COVID vaccine, her recent diagnosis of Parkinson's, and frustrations with insurance companies and changes to the healthcare system. She also explains how the pandemic has made it more dif

February 17, 2021 | 11m 33s
PATIENT STORY

...and fortunately I did not have not one single problem...

This storyteller shares their experience navigating the health care system, during the COVID-19 Pandemic, as a retired nurse.

June 17, 2021 | 08m 14s
PATIENT STORY

"It immediately starts to effect your mental health because you just want to know what you're dealing with."

A participant talks about his experience with COVID-19, getting tested, his worries with pre-existing health conditions, and his recovery. He also talks about how he maintains his mental health and physical health after his diagnosis.

March 02, 2021 | 25m 15s
PATIENT STORY

...I was just only existing in life, instead of living my life.

This storyteller shares the mental and emotional impact they experienced during the COVID-19 pandemic and the isolation and anxiety they felt , especially having experienced symptoms themselves and visiting the hospital.

June 15, 2023 | 17m 54s
PATIENT STORY

That's the worst thing you can do with a person with a disability is to have their value not matter, to act like they can't do for themselves, to act like they are disabled. Meet them where they are,

This stroyteller shares her story of what her experiences are like being legally blind during the COVID-19 pandemic.

May 28, 2020 | 27m 00s
PATIENT STORY

...it's just a mess and it needs to be re-vamped , so that we're getting the health care that we need.

This storyteller shares the challenges in getting appropriate and timely treatment for POTS and a late diagnosis of Vascular Ehlers-Danlos syndrome, especially after lost health records and increasingly challenging body regulations. .

March 30, 2023 | 23m 22s
PROVIDER STORY

..so it was interesting being a physician that was now a patient on the other side of the table.

This storyteller shares their experience during the COVID-19 pandemic as a physician, teacher and the impact it had on personal changes and transitions.

April 17, 2023 | 21m 27s
PATIENT STORY

"If I get a hangnail, I think it's cancer coming back"

A storyteller talks about her stage 2 breast cancer diagnosis, healthcare team, and recovery to be cancer-free today. She also talks about current health concerns of weight management and cholesterol. She ends her story by talking about the impacts of COV

February 22, 2021 | 26m 24s
PATIENT STORY

I really had to learn to appreciate my own company.

This storyteller shares their experience during the COVID-19 pandemic; the decision to get vaccinated for community and elders, challenges with getting health care while in pain, and how misinformation caused tension between families.

May 19, 2023 | 19m 34s
PATIENT STORY

...not only protect them, but some of my other family as well.

This storyteller shares their experience getting the vaccine, getting tested for COVID-19. and managing their mental health.

February 22, 2023 | 21m 37s
PATIENT STORY

...and it's always taking away from your safety, instead of adding to it.

This storyteller shares the challenges of working as a surgery technician , during COVID-19, and the subsequent changes that have happened.

April 20, 2020 | 21m 00s
PATIENT STORY

There's just fewer specialist, fewer resources, there's fewer trained practice...

This storyteller explains how access to the competent inexpensive healthcare is a privilege for some, when it should be a right for all.

August 14, 2020 | 24m 00s
PATIENT STORY

...for the entire scope of the pandemic, I've only ever received two COVID tests.

This storyteller shares their perspective and experience with COVID-19 pandemic as they begin nursing school.

June 16, 2021 | 18m 49s

Please Note: The contents of this website are for informational purposes only and are not medical advice. Please consult your physician for any questions you have related to your individual medical condition. If you are in need of immediate medical help, go to the nearest emergency room or call 9-1-1.

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