...she didn't even want to go to the doctors anymore, because none of them have many positive to say.

October 21, 2021 | 25m 24s

This storyteller shares being alongside their spouse through their Myotonic Dystrophy diagnostic journey and the frustration of working with health care workers with a chronic, debilitating condition.

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STORYTELLER ATTRIBUTES

AGE:50 - 59

GENDER:Male

EDUCATION:More than a college degree

RACE/ETHNICITY:White

LOCATION (ZIP Code 1st digit):3xxxx

PERSPECTIVE:Caregiver

STORY TYPE

BODY PART(S):Bones, Joints and Muscles; Brain and Nerves; Kidneys and Urinary System; Lungs and Breathing; Mouth and Teeth; Mental Health

DISORDER OR CONDITION TYPE:COVID-19; Brain and Nerves; Genetics/Birth Defects; Infections, Injuries and Wounds; Mental Health; Having multiple health conditions at the same time

TOPIC:Finding out a diagnosis; Communicating with doctors and nurses; Supporting family members who are sick; Describing how easy or hard it has been for loved to get the health care your loved needed

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