...when mistakes are made, it should be an opportunity to correct them...

August 18, 2021 | 37m 24s

A genetic disorder passed down through now three generations, leaves this storyteller sharing their experience with CADASIL and the challenges with getting answers when research has not reached far enough.

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STORYTELLER ATTRIBUTES

AGE:50 - 59

GENDER:Female

EDUCATION:More than a college degree

RACE/ETHNICITY:White

LOCATION (ZIP Code 1st digit):1xxxx

PERSPECTIVE:Caregiver

STORY TYPE

BODY PART(S):Blood, Heart and Circulation; Bones, Joints and Muscles; Brain and Nerves; Digestive System; Endocrine System; Eyes and Vision; Kidneys and Urinary System; Lungs and Breathing; Mental Health

DISORDER OR CONDITION TYPE:Cancers; COVID-19; Brain and Nerves; Genetics/Birth Defects; Infections, Injuries and Wounds; Mental Health; Substance Abuse; Having multiple health conditions at the same time

TOPIC:Experiencing symptoms; Finding out a diagnosis; Being treated; Getting tests or advice for how to be healthier; Communicating with doctors and nurses; Supporting family members who are sick; Making decisions about the right health care or treatment for you; Describing how easy or hard it has been for you to get the health care you need; Getting health care that is right for your rare genetic disorder

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