We do have good healthcare out there, but it isn't always perfect

April 10, 2019 | 18m 16s

A mother recounts her family's emotional experience with her daughter's rare brain tumor and the importance of parental advocacy and instinct.

Helped me learn (0)

Made me feel better (0)

Story Transcript

A transcript for this story does not exist. If you're a researcher who is transcribing this story for research purposes, please email the transcription to us.

STORYTELLER ATTRIBUTES

AGE:40 - 49

GENDER:Female

EDUCATION:High school graduate or GED

RACE/ETHNICITY:White

LOCATION (ZIP Code 1st digit):1xxxx

PERSPECTIVE:Caregiver

STORY TYPE

BODY PART(S):Brain and Nerves; Ear, Nose and Throat; Eyes and Vision; Lungs and Breathing; Mental Health

DISORDER OR CONDITION TYPE:Brain and Nerves; Mental Health

TOPIC:Experiencing symptoms; Finding out a diagnosis; Being treated; Getting tests or advice for how to be healthier; Communicating with doctors and nurses; Supporting family members who are sick; Making decisions about the right health care or treatment for you; Describing how easy or hard it has been for you to get the health care you need

Share your health story

Share your own story to help others understand what it is like to live with health problems.

Learn more about sharing your story

Resources

Wondering what it's like to be a patient partner in a clinical study? Here are some links to resources.

Visit our Resources page