I was diagnosed with Charcot-Marie Tooth Syndrome

March 22, 2019 | 15m 00s

In this story, a woman describes how she learned to deal with her genetic disease when her doctors weren't familiar with it by starting a support group for others with CMT.

Story Transcript

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STORYTELLER ATTRIBUTES
Female
More than a college degree
White
3xxxx
Patient
STORY TYPE
Bones, Joints and Muscles; Brain and Nerves
Brain and Nerves; Genetics/Birth Defects
Experiencing symptoms; Finding out a diagnosis; Being treated; Communicating with doctors and nurses; Describing how easy or hard it has been for you to get the health care you need
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