And of course the problem is nobody's heard of what I have.

September 08, 2022 | 27m 44s

This storyteller shares their experience with navigating the health care system managing multiple health emergencies and a rare disorder, Schnitzler syndrome.

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STORYTELLER ATTRIBUTES

AGE:60 - 69

GENDER:Male

EDUCATION:Some college or 2-year degree

RACE/ETHNICITY:White

LOCATION (ZIP Code 1st digit):Lxxxx

PERSPECTIVE:Patient

STORY TYPE

BODY PART(S):Blood, Heart and Circulation; Bones, Joints and Muscles; Digestive System; Ear, Nose and Throat; Immune System; Kidneys and Urinary System; Lungs and Breathing

DISORDER OR CONDITION TYPE:Infections, Injuries and Wounds; Mental Health; Having multiple health conditions at the same time

TOPIC:Experiencing symptoms; Finding out a diagnosis; Being treated; Communicating with doctors and nurses; Making decisions about the right health care or treatment for you; Describing how easy or hard it has been for you to get the health care you need

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