…I couldn't do it, I couldn’t use my hand-I lost my motor function.

June 07, 2021 | 21m 15s

This storyteller shares their experience navigating health research institutions searching treatment options for amyloidosis, as motor functions become more challenging.

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STORYTELLER ATTRIBUTES

AGE:40 - 49

GENDER:Female

EDUCATION:Some college or 2-year degree

RACE/ETHNICITY:White

LOCATION (ZIP Code 1st digit):1xxxx

PERSPECTIVE:Patient

STORY TYPE

BODY PART(S):Blood, Heart and Circulation; Bones, Joints and Muscles; Brain and Nerves; Immune System

DISORDER OR CONDITION TYPE:Cancers; Brain and Nerves; Genetics/Birth Defects; Infections, Injuries and Wounds; Mental Health; Having multiple health conditions at the same time

TOPIC:Experiencing symptoms; Finding out a diagnosis; Being treated; Getting tests or advice for how to be healthier; Communicating with doctors and nurses; Making decisions about the right health care or treatment for you; Describing how easy or hard it has been for you to get the health care you need

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