...and that really pisses me off, because you are a doctor you have million of resources to find out what that is in five minutes...

October 15, 2021 | 35m 40s

This storyteller share about being diagnosed with Dystrophy Myotonic at the age of nine; around the sametime her father would be first diagnosed as well.

Story Transcript

A transcript for this story does not exist. If you're a researcher who is transcribing this story for research purposes, please email the transcription to us.

STORYTELLER ATTRIBUTES
30 - 39
Female
More than a college degree
White
2xxxx
Patient
STORY TYPE
Blood, Heart and Circulation; Bones, Joints and Muscles; Mental Health
Genetics/Birth Defects; Mental Health; Having multiple health conditions at the same time
Experiencing symptoms; Finding out a diagnosis; Communicating with doctors and nurses
Share your health story

Share your own story to help others understand what it is like to live with health problems.

Resources

Wondering what it's like to be a patient partner in a clinical study? Here are some links to resources.

Copyright 2019 | PaTH Network