...it's not psychological or just psychological, it's the interaction of all these things simultaneously.

October 21, 2021 | 29m 27s

This storyteller shares the limits family will go in advocacy for their spouse and two children diagnosied, in the 80's, with Myotonic Muscular Dystrophy.

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STORYTELLER ATTRIBUTES

AGE:

GENDER:Male

EDUCATION:High school graduate or GED

RACE/ETHNICITY:White

LOCATION (ZIP Code 1st digit):1xxxx

PERSPECTIVE:Patient

STORY TYPE

BODY PART(S):Blood, Heart and Circulation; Bones, Joints and Muscles; Brain and Nerves; Digestive System; Ear, Nose and Throat; Endocrine System; Eyes and Vision; Immune System; Kidneys and Urinary System; Lungs and Breathing; Mouth and Teeth; Mental Health

DISORDER OR CONDITION TYPE:Brain and Nerves; Genetics/Birth Defects; Mental Health; Having multiple health conditions at the same time

TOPIC:Experiencing symptoms; Finding out a diagnosis; Being treated; Getting tests or advice for how to be healthier; Communicating with doctors and nurses; Supporting family members who are sick; Making decisions about the right health care or treatment for your loved

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