About the Study

The Polycystic Kidney Disease Treatment Network (PKD-TN) has developed the HALT PKD clinical trials to evaluate certain FDA approved drugs that may be effective in slowing kidney growth in persons who have polycystic kidney disease. Seven centers across the United States are participating in the two trials.

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Alan found out he had polycystic kidney disease around 5 years ago. He has generously agreed to share his story for us.

I had never heard of Polycystic Kidney Disease until about five years ago when an MRI revealed spots proliferating my kidneys and liver. I was 45 and the cause of my stomach trouble leading to these tests had nothing to do with the PKD they discovered. The big fear was cancer so when we reviewed an autopsy that had been performed on my father and found that he had PKD, it was actually a minor relief.

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Nutritional Corner by Kelly Welsh, R.D, C.D.

this months recipe is Roasted Corn and Edamame Salad, click here to read more.

Nutritional Corner by Kelly L. Welsh, R.D, C.D.

This months recipe is Roasted Corn and Edamame Salad. Bon apetit!


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Roasted Corn and Edamame Salad
Prep Time: 1 hour
Servings: 6
Ingredients Per Serving
1/2 cup shelled edamame Calories: 51.59 Omega-3 (g): 0.04
1/4 cup chopped red onion Protein (g): 2.66 Omega-6 (g): 0.22
1/4 cup small-diced red bell pepper Carbohydrates (g): 8.06 Phosphorus (mg): 43.39
1 tablespoon finely chopped fresh cilantro Dietary Fiber (g): 1.47 Potassium (mg): 162.26
1 tablespoon light mayonnaise Fat (g): 1.60 Sodium (mg): 89.86
1 tablespoon lemon juice
1 1/2 teaspoon finely chopped or grated ginger
1/8 teaspoon salt
1/8 teaspoon freshly ground black pepper
2 ears fresh corn, unhusked, or 1 1/4 cups cooked corn kernels
Soak fresh corn in cold water about 30 minutes. Heat grill on high. Grill corn in husk, 10 to 15 minutes, turning once. Let cool. Remove husks. Cut corn from cob into a bowl; combine with remaining ingredients. Cover and chill in refrigerator until ready to serve.

Nutritional Fact

The recommended daily allowance for the intake of caffeine in one day and the PKD patient...is no more than 200 mg/day. That would equate to approximately 16 ounces of regular coffee.

About the Author

Kelly L.Welsh, R.D., C.D., is a dietician and author of the book "Brilliant Eats: Simple and Delicious Recipes for Anyone Who Wants to Be Kidney Wise". Click here to purchase her book.